laishlife:
myautisticpov:
telluriciron:
jumpingjacktrash:
the-real-seebs:
laishlife:
Please stop diagnosing yourself with autism just because you FEEL weird or random or quirky.
Autism is not a quirk or gender you can just assign to yourself. Autism is a very real and serious mental condition that can cause a lot of struggle and pain for people who truly have it.
Just pretending you have it with no real evidence does two things:
1.) It can give lots of people a wrong view of what autism looks like
2.) It can take resources away from people who are actually officially diagnosed with it and need the support for it more than you do.
So stop it because it’s incredibly destructive and incredibly insulting to people who actually have it.
What resources, specifically? I’ve never had any “resources”, so I’m not sure what’s been taken away from me by all these people. If anything, I’d think this would be a great case for curb-cutter effect.
That said, I think you’re talking about two different things. Self-diagnosis is not “pretending you have it with no real evidence”.
Back before she got clinically diganosed, one of my friends began thinking she might be autistic. She found a lot of things stressful that other people didn’t find stressful. So she talked to her doctor. And she got a referral to a “specialist”. Who asked her why she thought she was autistic, talked over her when she tried to answer, and informed her that since there’s no cure, there’s no point in seeking a diagnosis as an adult.
So, after that, she wasn’t even able to bring herself to call people. But she made a list, and I called a couple of other therapists, and explained the situation, and I got a therapist who said basically “I am pretty sure I know who your friend saw, and she’s not the only one with that story”, so I referred her there, and now she’s got a clinical diagnosis.
I’m hilariously-obviously autistic. The first psychologist I brought the topic up with dismissed it out of hand. Not even a hint of questioning about rationale, just “no, you’re not autistic”. He was, it turns out, completely wrong, because he know roughly jack shit about autism. In my case, I didn’t really think about it again until I was a couple of chapters into Elizabeth Moon’s The Speed of Dark and found myself trying to remember what was supposedly weird about the viewpoint character, because he made total sense to me. So I found an actual specialist and by the time I’d rewritten the intake questionaire so I had space to write answers and also could fix the typos, my interview wasn’t about determining whether or not I was autistic, but figuring out more about the specifics.
But in each case, we spent some amount of time (several years, in my case) having been specifically told by a person with a degree that we weren’t autistic, even though we were.
Which is to say, if we were to adopt your model, we would have been denied whatever “resources” were in theory available, even though we were actually autistic and needed them.
And of course, people going around saying we’re not autistic because we don’t meet their expectations can also give people a “wrong view” of what autism looks like.
Possible alternative theory: What if you stopped gatekeeping? I do not require your gatekeeping services. I would rather everyone try out accommodations and coping strategies which appeal to them, and use them if they work.
autism diagnosis is not a bowl of candy. it is not getting used up by people having one. the autism diagnosis bowl will not be empty before you get yours, op. calm the fuck down.
#actuallyautistic#great wall of nope#gatekeeping#what the fuck is it with gatekeeping on this hellsite#is it a fun hobby#can i persuade you to take up paintball or scrapbooking instead
I’m really sick of seeing shit like OP.
Autism diagnosis for adults is shit. [1]
Autism diagnosis for girls is shit. [2]
Autism diagnosis for PoC is shit. [3]
Autism diagnosis for working class kids is shit. [4]
And even if you can get a professional diagnosis, as an adult, getting one can do more harm than good.
It can open you open to medical abuses [5] and discrimination, particularly in custody cases if you have kids [6].
The only “help” or “resources” it affords you as an adult is usually as a legal defence if your boss tries to fire you for it [7]. And in most places, that still requires that you have enough money for the lawyer [8].
So, it’s incredibly difficult to get a diagnosis for most people, and getting one is usually of little use to adults at best and outright damaging at worst.
Time and time again, autistic adults say “the only thing the diagnosis got me was a community” and for some of them, it also cost them.
Gatekeeping actively hurts people who otherwise wouldn’t get the diagnosis – for perfectly legitimate reasons like maybe they’re divorced and don’t want their shitty ex to have the ammo to spitefully take away their kids – by forcing them to get one just to access the community.
It’s shitty and uncalled for, OP.
You. Are. Actively. Hurting. People.
References under cut
Keep reading
The “I don’t wanna get diagnosed because then people with discriminate” excuse is probably the worst…
People don’t like what they don’t understand. If I’m acting weird and having meltdowns and my friends don’t know what the heck is up with me then they are more likely to ditch me. But if I have a clear cut explanation of what I have and why and have done the research on it then people are actually more likely NOT to discriminate. So you kind of have it backwards.
And who the hell told you that you can’t keep your kids if you have autism? My mother has bipolar Manic, depression, dyslexia, and ADHD and had 4 kids just fine.
If people can get away with abusing their kids openly and post it to YouTube without having a custody battle, then I’m pretty sure you won’t lose your kids just for getting a diagnosis…
And as for resources, you’re forgetting job openings and financial benefits tailored specifically for people who suffer from autism, which can inhibit some (not all) from being able to keep a steady job, like me. That’s not an infinite resource because you only have so much money you can just give away.
You have a pretty ignorant view on getting a diagnosis and actually doing research on what you have.
No, I don’t have it backwards, because YOU DON’T NEED A DIAGNOSIS TO EXPLAIN IT TO YOUR FRIENDS.
That’s what self-diagnosing is literally for. I mean, I explained this on another reblog.
I Linked A. Article About Autistic Women Being Unable To Keep Their Children.
This is a very common concern for autistic adults. Like, good for your mother, but her experience is singular and doesn’t speak for every disabled person out there.
This is a problem that has been talked about time and time again. It is one of the cornerstones of disability advocacy. But, you know, I suppose if your personal experience counters that, we should all pack up and go home?
No, I’m not forgetting job benefits and financial benefits. They… aren’t available to self-diagnosed people? Like, you literally can’t get them? And no one is suggesting that you should be able to?
My point is that not everyone has access TO those resources. In fact, the majority of autistic people (with paper diagnoses like mine) can’t access them. You’re right, they’re not an infinite resource. In fact, they are so limited that you’re really taking a gamble as to whether or not you get them when you go for a diagnosis, and given that an adult diagnosis can take years if you don’t already have a large chunk of cash to pay for it privately… Well, what the fuck are you supposed to do in that position? If you need the financial resources, but know that it can take years before you’re even diagnosed?
Which brings me to my first point, which you have conveniently ignored and which I provided links to research to back up, the fact that minority groups are frequently cut off from getting a diagnosis?
What are they supposed to do about their friends abandoning them when they have meltdowns? Suck it up?
And I’m sorry that last part is fucking laughable. I’M ignorant and haven’t done my research?
I Provided You With Links To Said Research!
Links I have taken from my master’s research on this topic!
You came back with “well, in my experience”. Like, good for you. I am also autistic, and my experience doesn’t line up with yours.
And I’m Not The One Using My Experience To Be A Dick To Other Autistic People.
If you’re going to gatekeep, come back with stronger arguments. Otherwise, I’m going to keep reminding everyone that
Self-diagnosed People Are Welcome In The Community!
And hey, look, here’s a link to ASAN saying the same thing. I mean, I know that OP isn’t going to fucking read it, but for everyone else: http://autisticadvocacy.org/about-asan/position-statements/
In addition, we use the term Autistic Community to refer inclusively to people who have been identified by professionals as being on the autism spectrum and to those who are self-identified. We recognize that there are many reasons why a person may fall into one group or the other, and we respect the right of individuals in our community to make their own choices in this regard. Many Autistics were given a diagnostic label in childhood or sought a formal diagnosis in adulthood to obtain services and accommodations. Others have not done so for reasons that include financial barriers, lack of qualified professionals in a locality, obtaining sufficient accommodations on an informal basis, or the political view that our community should not have professionals as its gatekeepers. ASAN believes that all of us can and should work together in solidarity to accomplish our common goals.
Being anti-self dx is like standing on a rooftop and waving a flag that says “I’m ignorant and privileged”
Kirkwall Was Totally Built On a Hellmouth 