Tag: chronic illness

white chronically ill folk

lianhongba:

lianhongba:

i cannot tell you how many times, that people dont think i am chronically ill. because i’m brown. even on tumblr, the amount of people who immediately assume i am not chronically ill because i talk ab racism at the same time.

when i talk ab racism and racism with white spoonies, you all white ppl default to assuming i am not a spoonie myself. that is just. racism like you wouldn’t even know.

if you knew the racism that doctors perpertuate against chronically ill people of colour you would shut the hell up.assuming a nonwhite person talking ab racism with white spoonies to not be chronically ill is a form of racist medical violence

.you’re not better than the doctors who laugh at us and say we’re just lazy or that we try to milk the medical system like fuck all of you.i see to many of you like this and none of you hold yourselves accountable

this is ok to reblog even if you are not chronically ill but i would like other chronically ill people, esp white spoonies to reblog this please.

there is a huge amount of racism with the spoonie community and its never really addressed

One Day Without Diabetes

diabetesyoyo:

image

Every once in a while you deserve the right to take a day or two off from your work, whether it’s from a job or a school, to relax and forget about the daily grind and routine. But this is such luxury which people who suffer from chronic illnesses like Type 1 Diabetes cannot afford – neither the patients themselves nor the family looking after or supporting them. Managing the condition is a full time job 24 hours a day, 7 days a week, 365 days a year. Not a single day off.  Not one.

Sometimes you wish you could take just that one day off to feel ‘normal’. Eat what you like without worrying about carb counting, walk barefoot on the beach without worrying about getting cuts on your feet or just sleep as long as you want to without having to wake up and check your blood sugar levels or do your injections. Just for one day.

New developments to find a cure for diabetes look promising, such as the discovery of how to grow insulin-producing cells by Harvard University scientists. But the absolute, definite cure is still years away in the future. In the meantime, the focus on lessening the burden of diabetes management through artificial pancreas provides a glimmer of hope; being able to take that one day off from diabetes and achieve a degree of normalcy may not be wishful thinking anymore.

November is diabetes awareness month culminating in the World Diabetes Day on the 14th day of the month. This one day puts continued focus on driving awareness and advocacy for the condition and ultimately to finding the elusive cure. We can all play a part in this by supporting and helping the global diabetes community spread the word so that the day we are hoping for will come sooner rather than later – one day.

To find out more about the World Diabetes Day click here.

Reblog if you would read a post-apocalyptic comic about disabled people

neuroatypically-speaking:

Seriously. Because I have an idea for one, and I want to see whether I can make it work. I don’t know if I can find an artist who’d be interested in collaborating on it, but if I can, I have some ideas on how to fund it. I just want to see enough people would be interested in it.

Surely I can’t be the only one who’s tired of the idea that the apocalypse would wipe out all disabled people because we couldn’t possibly survive. 

As a person with a chronic illness (type 1 diabetes; diabetics and others who need medication to survive don’t tend to fare well in post-apocalyptic media), I’d love to see something like this.

crohns-sucks:

neecygrace:

Today’s picture for invisible illness is a personal one. This is one of about 30 notes that my friend has received since using her handicapped placard. I’m going to say this to you, have you ever seen someone get out of a car parked in a handicapped space and said to yourself “they look too young or they don’t look disabled.” I’m going to go with yes you have, because we all have at one time. I can’t remember doing it, but before I understood the difficulties of invisible illness when I was younger I probably did. Let me ask you this though, when you had that thought was it because you knew with 100% certainty that they weren’t handicapped or did you assume that because of their age and/or not seeing a cane, walker or wheelchair? All I’m asking is that we stop and think when we someone need a mobility aid, park in a handicapped space or say they are disabled that we remember this “DISABILITY HAS NOTHING TO DO WITH AGE OR APPEARNACE.” #spoonie #invisibleillness #disability #chronicillness #rheumatoidarthritis #lupus #fibromyalgia #myofascialpainsyndrome

If nothing else, this post needs to be seen around the internet more. This harassment is not okay and no one should have to deal with it on top of having an invisible illness. This is just another form of anonymous bullying to add to the internet bullying these TROLLS are capable of.

If you are healthy, please reblog.
If you are sick, please reblog.
If you have a disability, please reblog.
If you have an invisible illness, please reblog.
If you know someone with a disability, please reblog.
If you are a human being, please reblog.

Let’s spread the word and help those of us that may not look like it. 

Ignorance isn’t bliss, ignorance is ignorance. 

bisexualfandom:

thehoh-society:

bisexualfandom:

brisk23:

disabilityfest:

brisk23:

disabilityfest:

Disability is often overlooked and ignored in fandom, and disabled characters often don’t get the love they deserve. We want to change that.

In the spirit of representation and appreciation events such as femslash february and repfest, we would like to take the whole month of July to put on a panfandom celebration of disabled characters.

Any fanwork is welcome! Just tag your contributions with #disabilityfest.

Please spread the word by reblogging this, so more people can know about #disabilityfest. 

If you have any questions, please don’t hesitate to ask.

This is wonderful and all but what the fuck disability did Angel have? Did I completely miss something my whole 17 years of loving that character/musical?

angel is HIV positive, which is a chronic/terminal illness.

Still see it as a disease not a disability but whatever makes your boat float

….you are aware that diseases are disabilities???

I don’t know how comfortable I am with a disease being equated to a disability.  Is that really helping our cause?

as far as i’m concerned, yes. any disease like cancer, chron’s, MS, parkinson’s, or HIV/AIDS are considered chronic or terminal, and are just as debilitating as any other disability, and people who are chronically/terminally ill have every right to consider themselves disabled, and are just as important as any other person in the disabled ‘community’.

From a Q&A on what is and is not covered by the American Disabilities Act: “An individual with epilepsy, paralysis, HIV infection, AIDS, a substantial hearing or visual impairment, mental retardation, or a specific learning disability is covered, but an individual with a minor, nonchronic condition of short duration, such as a sprain, broken limb, or the flu, generally would not be covered.”

Chronic illnesses that interfere, or can interfere, with daily life are covered by the ADA. 

Random thing that sucks about having type 1 diabetes (and which probably is also true for a fair number of other chronic illnesses):

When your best blood-drawing vein starts getting enough scar tissue to make it hard for the lab tech to draw blood. This especially sucks when the corresponding vein on your other arm is in a weird position for drawing blood.

insulinismylife:

“Diabetics shouldn’t have kids.”

“All of that sugar is why you’re diabetic to begin with”

“Constantly giving yourself shots is a disgusting way to live." image

The "you did it to yourself by eating too much sugar” is one of the most hideous pieces of bullshit ever. 1) Shaming people for their diseases/conditions is disgusting and is, in a way, a form of victim-blaming. 2) There are are INFANTS who develop type 1 (see ten-day old with an insulin pump). I can assure you those babies have not eaten too much sugar. 3) Far, far too many other things that can be added.

Also, the one time in my life that I have literally seen red happened when, back in the days when I still thought I would someday want to carry a child or two, someone I no longer talk to online basically said, of the chance that any child I might produce might also develop diabetes, “Why would you want to do that to a child?” followed by some cutesy sad face emoticon.

It is well for both of us that we were separated by a computer screen and several hundred miles, as if she’d said that to my face I would probably have hit her as hard as I could.

It’s hard. But sometimes you find things make you feel…a little hopeful.

So this month–this week, actually, I think–marks the 16th anniversary of my diagnosis with type 1 diabetes.

Tonight I stumbled across this post (I almost reblogged it, but one of the pictures seems to be not actually for World Diabetes day, according to Google Image Search; the post also only highlighted type 1, and World Diabetes Day is for all people with diabetes, not just those with type 1) and I just cried. Because lighting up monuments for World Diabetes Day is something I didn’t know about, and the fact that people would agree to do that for a chronic illness that is too often reviled and misunderstood…I don’t have a word for how that makes me feel. “Touched” isn’t strong enough. Neither is “moved” any other word that might be used for it.

There are no words only tears of deep gratitude that someone in charge of the care of these monuments would be willing to do this, whatever their personal thoughts or motives might have been.

It seems like such a little thing, but it’s huge to me.

Here’s an article from 2007 about the first World Diabetes Day that has more pictures of more monuments.